Cheri is the blogger in the family but her and Jackson are resting in bed so I'm going to try my hand at it. Surgery got started late and took about 3 hrs. The Neurosurgeon said everything went well and as expected. We are back in the same room in the pediatric ICU. The first 24hrs will be the most painful, but he is on a heavy dose of morphine every 2 hrs so he is in and out. Even though his eyes are closed he must still be listening because he knows when Tom and Jerry goes off so we have to restart the DVD over and over again. I'll try to explain what they did and why. Most of you already know the story but I'll start from the beginning.
Because Jackson was born 11 weeks early he had a hemorrhage in his brain. (the brain is not ready to go thru the trauma of birth this early and is too weak) The blood clot developed in a pathway where spinal fluid is drained from the middle of your brain (ventricles) thru your spinal cord. This is called hydrocephalus or water on the brain. This is not uncommon in premature births as early as Jackson and older adults can develop it after strokes or severe head trauma from accidents. So Jackson had to have a shunt inserted into the ventricles (middle of the brain) to drain the fluid. The shunt consists of a catheter inserted into the brain and comes out behind his right ear where it is hooked up to a valve just underneath the scalp. Then there is tubing hooked up from the valve and runs down the inside of his right side into his abdominal area where the fluid is absorbed. (Am I boring anyone yet)
Now, since the valves drain at a steady rate there is no pressure on the brain to grow outward so there is no pressure on his skull to expand which caused it to fuse early in several areas. In normal people, the fluid in your brain is regulated naturally thru your body. As you get older the ventricles get bigger which causes your brain to expand which causes your head to grow. The brain and head in people continue to grow until they are about 18 years old.
Because Jackson's is fused, his brain is basically trying to grow but has nowhere to go. The Dr. said he could tell by the scans that there is areas on the inside of his skull that are indented from his brain growing into it. All this causes major pressure in the head which causes Jackson to get very, very sick. We've been dealing with this issue since last August.
So what he did today was make an incision from ear to ear over the top of the head and peel back the scalp so he could see the skull. He cut out the top half of the skull which was fused and broke it into several pcs so that the brain and skull could continue to grow. (I hope I'm not grossing anyone out) He put the pcs back leaving 1/4 to 1 inch gaps so that things can expand without the pressure, like normal people.
Hopefully this fixes the problem, I guess only time will tell. There is no doubt Jackson will need more surgeries down the road, but right now we could use going years without one. He's not even three yet and has had at least 10 surgeries. He's a tough kid.
Monday, July 9, 2007
Surgery is complete
Posted by The Barnett's at 6:12 PM
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12 comments:
Sounds like great news. You are right, definitely a tough kid (like Cheri). Can't wait until you can get him home! Still praying for you all. I've checked this blog no less than 100 times today.
Thank you so much for the update. I think I spoke with your Dad earlier. He was very kind to give me information about the surgery. I am so thankful that things went well. You guys are still in our prayers. Please tell Jackson - I love him and miss him sooooo much! Tell him he gets first pick out of my bag when he gets home- any toy is his to keep!
Love you guys,
Carmen
we are very glad that surgery went so well today. Brandon thanks for the explanation. it really helped. Jackson has been through so much but he is a fighter. prayers were answered today. so many people were praying for all of you. you all have been through so much. we all wish we could be there to help. we will continue to pray for Jackson's recovery. love you all, aunt cin cheri, i hope your doing ok. it's got to be very hard to watch him go through these surgerys. you both are such great parents. we will keep praying. love you soooo much.
Great News!!!!!!! We are so glad that everything weny good! You know theres this saying. The good Lord will only give you what you can handle. Well I think the three of you have handled enough!As always our thoughts and prayers are with you guys always. Love Bob,Christy,Josh&Kelly Great job on the blog!
Sending our love and prayers from the West Coast. Hope all continues to go well!
Matt, Stacy, Sydney and Madelyn
Hey guys, I'm so glad to hear that everything went well. I thought about you all day! Brandon did an excellent job explaining everything. Jackson is a tough little guy... has been from the very start. You guys are too. Hang in there and if there is anything I can do please let me know.
Love you all!
Laurie, Jay & Hannah
So relieved to hear that surgery went well and Jackson is doing as well as can be expected. What an ordeal you've gone through since last August. We continue to send hugs and well wishes...and hope you'll all be heading home very soon.
It's good to hear that you are all resting comfortably now. Brandon, thanks for the explanation ... now I understand. Cher, hug that little guy really tight and continue to be strong.
Jackson, it's time for you to get better so you can go outside and play.
Love to you all,
Uncle Bob and Aunt Cher
Hey:
Thanks for the update! It is hard being so far away! Keep updating. It is great to know what is going on. If it's OK...I'd like to add Jackson to our prayer chain at church. You could use a few prayer warriors behind you right now. Let me know what you think! Hang tough. Stick close to each other!
With Love,
Dave, Gwen and Boys!
So happy to hear that everything went ok...can't wait to see you in a couple of weeks! Love you and miss you, give Jackson a big hug and kiss from his Auntie Heather:)
Hey Brandon, It looks like all the prayers being sent are working. Great to hear everything went well. I must say, Jackson couldn't have done better than to have you and Cheri as parents. It seems like just yesterday we were playing video games downstairs at the old house, and you were such a monster! ha! ha ! Boy how things have changed. Your mother and I are so proud of you. Stay positive, and we will see you soon. Mom and Steve
Hey Guys,
An answer to prayer!! Cim called yesterday to say surgery had gone well. What a trooper Jackson is! We're still praying for you, and that Jackson is done with surgeries. We love you guys!
Ed, Peg, Joe and Ty
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