Finally A Good Day

Lets see so much to post...Yesterday the ICP monitor came out and he was fine for a few hours after that. He talked a bit and ate some french fries and was in a pretty good mood. Then in the early evening he started to get ill and he threw up all the fries. After that he started literally pulling out his hair. We don't know why or what was going on but he would be fine for about 5 mins and then just scream and try to pull his hair out. We had to hold down his arms until he calmed down and fell sleep, then the next one would hit. At one point he scratched one of the scabs from the incision and it started bleeding and then leaking CSF (spinal fluid) so we had to wrap his head. Needless to say it was a very, very long night.


Today though turned out to be a really good day. We started with a CT of his head and tummy. Last night he kept saying that his tummy hurt. The head scans looked fine and we haven't heard the results of the tummy yet, I guess no news is good news on that. We had about 30 mins in between the two scans and were able to go outside for awhile. That was a real treat and felt great. When we got back to the room Jackson was in a good mood so we played with his stufties and pretended to feed them bananas. We laughed at Dora saying "banana pants" and he did his monkey dance (laying down of course). For lunch we ordered a grilled cheese sandwich and had a couple of little cookies. Then he had a bath, his first in three weeks! After all that excitement we both took a nap. For dinner he ate dinosaurs with meat balls and took a few bites of pizza. Then we went for a walk to see the fish and to play in the playroom. He is very wobbly when tries to walk and has lost a lot of weight since our stay (he had nothing extra to begin with). We'll have a lot to work on before he's back to his old self again but it's a start and he is beginning to act like our Jackson again. When we got back to the room he wanted to eat more pizza and colored a few pictures, daddy was able to lay in bed with him for this. He was pretty tired after his eventful day and is already sleeping, hopefully for awhile. Tomorrow they are going to bring up a therapy dog and we are meeting with PT and OT. I think we'll try to get outside again and back to the playroom. Today was good day! :)