Nine days and counting

Hello! I thought this would be much easier than calling everyone all the time with updates. This way you all are able to check out what is going on and don't have to wait or feel bad about calling and waking us up :).



Today seems to be much better than yesterday. Yesterday he was really sleepy and seemed pretty weak. When we took him for a CT we put him in a wagon instead of the bed and he still cried. All he wanted to do was sleep and watch Tom & Jerry. He perked up a little when he got the balloons from Nana and Papa Luban (thank you). The good news is it looks like the shunt IS working they put him on a med called diamox to slow the production of CSF to see if that would keep his pressure down. The bad news is that the NS isn't exactly sure why the pressure rises everytime the valve is shut. He also threw up a few times and they've given him something to calm his tummy and have increased his fluids.



We had a pretty good night. He only woke a few times and went back to sleep almost right away. They came in to take blood for labs around 4:30 and that set him off, though I can't blame him. They like to do labs early so that they have the results by the time the drs make their rounds. He had a few sips of water and about an hour later they came back up but they again gave him something to help nausea and some tylenol (which they have to give him up the hoo haa because his gag reflex is back).



We woke again around 8:30 and have been playing with cars and tractors and watching tv. Today he seems to be into Dora again. Take a guess how many times we've watched this since we've been here...uno, dose, trece...keep counting! He still doesn't have much of an appetite and I think we are going to just take it easy until tomorrow. His regular NS comes back tomorrow and we'll see what his plan is.